Cystic Fibrosis Foundation7d
FDA Approves New, Once-a-Day CFTR Modulator for People With CF
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
Cystic Fibrosis Foundation7d
FDA Approves Trikafta for 94 Additional Rare CFTR Mutations
The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...
Cystic Fibrosis Foundation8d
Finding Strength in the CF Community
When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...
Cystic Fibrosis Foundation9d
The Unexpected Aftermath of CF-Related Liver Disease
I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...
Cystic Fibrosis Foundation8d
Paul di Sant’Agnese Society
The Paul di Sant’Agnese Legacy Society is a group of Cystic Fibrosis Foundation supporters who have made a lasting commitment by making a legacy gift. It is a special way for us to honor your gift, ...